General Update! :)

Hey :)

I know that my bestie, Beth is the only one probably reading this but anyway.

I promised I was going to post more and now I am so thank you for bearing with me! :)
Basically, all that's been happening over the past week is that I had a splint appointment and she gave me a couple of hand splints to wear after I have been writing a lot to stretch them out. These are extremely uncomfortable and I am not sure they are even worth the hassle, but hey ho at least I tried. I also am meant to be getting a pair of orthopaedic boots which were ordered late September and still have not arrived, annoying or what? Especially since my last two pairs fell apart within two weeks. So now, I am having to wear my expensive evening boots and already they have holes in the soles because if the way I walk, oh the joys of Cerebral palsy.

Sorry about that NHS rant! ;)

Changing the subject, who's excited about Christmas?! I definitely am! It's all dark and cold and Christmasy, I love it! Only 19 days left! ;)

I will post every few days up to about the 19th December and then I will be really busy but I will definitely do Christmas and New year vlogs, yes you read right, I will be filming and uploading my very first vlogs! :) make sure to check them out on my youtube channel later this month: Eve Osborne.

Thank you! :)

Evie xx

Ranting about disability!

Hello,

In this post I will basically be going on about how society sees disability.

I recently read this just 5% of all people over the age of 18 have EVER considered dating or had a relationship with a disabled person. This seriously needs to change, we are just like anyone else, why is it such a big deal to date a disabled person?! It's not like we only date disabled people so why should able bodied people only date other able bodied people?! This is a topic that I am really passionate about, maybe this is because I have never had a long term relationship and the reason they all have ended it is because they don't want to be seen with the 'disabled' girl.

I would like to send a message to those idiots:

Get over it, I'm disabled I always have been I deal with it so you can too! Get over yourself!


Anyway, it isn't just this that really annoys me, it's how grown adults don't even address disability right. For example, a few years ago my old SENCO (special needs person at school) said to me and my mother how privileged she was to finally work with a SPASTIC!    Yes, you read it right she called me a spastic and she was supposed to be a specialist in special needs, this made me so angry and upset, but also caused me to lose complete faith in there ever being equality for disabled people.


So you get the point. Please, if you are able bodied reading this blog and never see a disabled person on there own, go over there, be nice and treat them like anyone else.


Thank you for reading.

Evie Xx

Catch up and Q&A questions!

Hiya Guys,

I know all my blogs start with this but I am literally so sorry that  I haven't posted in months but I promise I will try and post weekly and possibly daily if I have enough time!
If anyone's actually reading this, I hope you are having a great day and thank you for reading. As I have mentioned before, if you read my blog can you please let me know you're out there by leaving a comment with a bit of feedback about my posts, thank you!
Now, I am going to be doing a question and answer with my sister, who is sixteen. Please can you comment questions that you would like me to ask? Thank you!
In the last few months, I have had quite a few medical appointments including one at the Oxford Gait Lab. Basically, they stuck loads of reflective dots all over my legs and back, then they filmed me walking up and down with these special camera's that only pick up the dots. Finally, they used CGI technology to make the data collected into a computer model of my walking. It was SO WEIRD! You could tell it was me but I was a robot! Once they have that data, they can recommend surgeries and treatments that would help me. The only bit that hurt was when the women was ripping about fifty sticky things off my legs at the end, OUCH!!!!! They did recommend two surgeries but my surgeon didn't think that they would be worth the pain and recovery time for me.

Other than that not much has been going on health wise. I still experience back pain and spasms but I think I am just going to have to live with it, it could be worse.

Thank you for reading and remember to comment your Q&A questions!

Evie Xx

Bed, books and awareness!

Hello Guys!

I am back!!!!!!!!
The reason I have basically stopped posting is because there has been no interest in my blog and I am trying to focus on my school grades. If you are reading this but not leaving a comment then please could you make yourself known to me and thank you for reading this as I know I don't have the most interesting blog posts! I have recently read the book 'what the **** is normal?' By Francesca *can't remember her second name and I can't be bothered to go check* I would but I am comfortable in my bed and so warm right now! Anyway, you guys have got to read this damm book, it is truely amazing! Go search it on Amazon now I dare you, you will not regret it especially all my fellow CP mates if you are there! Anyway, enough about the book and my bed, I would really like your feedback on this blog, I realise you don't have much to go by as I haven't posted in 8 months but I loved reading the one comment I have received from this doctor bloke, sorry I forget your name :)

Tomorrow, I have got a BIG Maths exam and I thought this would be a nice break from my gruelling revision just to destress, I guessing that is coming though to my words?! :) Another thing that inspired me to re visit this blogging idea of mine was that last night I saw a programme called 'The C-Word' on BBC One, this was a short film based on a true story about a young woman who finds out the devasting news that she had Breast Cancer. If you haven't seen this, you need to get on to BBC iplayer tissues at the ready and press play. It was truly inspirational, funny and deeply sad all in one... Don't get me wrong this woman, Lisa Lynch was an amazing, kind person who deserved a lot more days than what she got but what I won't understand is why all these docs, films and books are about Cancer? Somebody please write, make or do something about disability as people need to be aware of this too, don't they? I agree nothing in the world is worst than having to be told you or your family has cancer but disability also can be awful at times too...

I am not trying to be horrible but people need to be aware.

Thanks for reading

Evie :)

Hey Guys,
First of all, I want to apologise for not posting in AGES!

I just thought I would give you a quick update about my life.
So Basically, I feel more positive about myself and less depressed which is a major step in my life. I am even enjoying looking at me walking in the mirror which six months ago I couldn't of done without bursting into tears. I used to look at the down sides, like the stares and the horrible comments but now instead I think about the perks that come with being disabled. Recently, I went to DisneyLand for the first time ever (I know right, how come I have only just discovered this joy?!) and I got to skip all the queues: 'coming through!!' ;). I mean come on, how awesome is that??!!!

Sorry for keeping it short but now I am going to be aiming to post at least once a day.

Please, Please, Please leave you comments below, I would much appreciate it!

Thanks
Evie :) xx